Mobility & Contracture
How scarring affects movement, stretching, exercise, and daily activity.
Flagship initiative
The Regenerative Living Study
A survivor-centered initiative designed to better understand the long-term realities of severe skin injury and the outcomes that matter most in everyday life.
Why this study
Healing is more than a closed wound.
Severe skin injury can affect how a person moves, sleeps, regulates temperature, dresses, exercises, works, socializes, and feels in their own body.
The Regenerative Living Study is designed to capture those lived realities so future research priorities can be informed by the outcomes survivors actually care about.
What we want to understand
The long-term picture.
The study framework centers on daily function and quality of life after severe skin injury.
Comfort & Sensation
Tightness, pain, itching, sensitivity, numbness, and other sensory changes.
Skin Function
Durability, dryness, sweating, temperature regulation, and skin care needs.
Daily Life
Clothing, sleep, work, relationships, recreation, confidence, and independence.
Reconstruction Burden
The impact of repeat procedures, rehabilitation, travel, recovery time, and ongoing care.
Future Priorities
What survivors most want researchers and innovators to solve next.
Participation
Survivor experience belongs in research.
Participation details, eligibility, consent language, and the final study process will be published here as the initiative is formally developed.
Express Interest →